Hello everybody,
Happy Saturday! Here is your quick update for today. Although I was hoping to get out of the ICU today, my body didn't seem to agree with the idea. After breakfast, I tried to go for a walk with my nurse on the unit. I got my cough back, and it wouldn't stop. We tried a breathing treament, which didn't work, so I had to get another dose of Epinephrine in a shot, and in a breathing treatment. This didn't help my case to move me out of the ICU or reduce my steroids, 2 of my goals for today.
Since then, thankfully, I have had no other setbacks, and had a few successful walks. So, hopefully tomorrow I will be able to move to the step down unit, where they will continue to keep me until they can wean my steroids enough. In the mean time, I have been trying to keep occupied, watching Finding Dory, and I finished my rug hooking. All in all, things are stable. I am SO ready to go home, but I know I still have a couple of days ahead of me. Until tomorrow!
A blog by Arielle, a twenty two year old with MCAS (Mast Cell Activation Syndrome), Autoimmune Angioedema, POTS (Postural Orthostatic Tachycardia Syndrome), Sjogren's Syndrome, immune deficiency, osteoporosis, and EDS (Ehlers Danlos Syndrome). Thoughts, feelings, academic endeavors, daily adventures (and misadventures). Pitzer College Class of 2018 (Psychology/Sociology) ---- UCLA Extension Patient Advocacy Certificate Program Winter 2019 ------ Family Resource Coach
Saturday, April 8, 2017
Staying Put for Now
Labels:
careaboutrare,
chronic illness,
dysautonomia,
mastcell,
mastcelldisease,
mcad,
mcas
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