Good afternoon everybody! I am happy to report that I am FINALLY out of the ICU, and on the telemetry floor! This is a monitored floor, but one where I have my own room, bathroom, some quiet and space, etc. I have been here since about 10 AM this morning, and I am enjoying the additonal independence. I am able to move around a little bit more here, and I am hoping to get more sleep tonight.
Although I am hoping to get out tomorrow, I am not so sure if that will actually happen. I am still on IV steroids and requiring around the clock Benadryl. We weren't able to reduce the steroids any more today as I have had a minor episode requiring inhaled epinephrine. I am going to talk to the doctor tomorrow and see if we can maybe move some of the IV meds to home, but I am not sure how well that will go over, and if that is truly the best option.
I will continue to post updates as I go!
A blog by Arielle, a twenty two year old with MCAS (Mast Cell Activation Syndrome), Autoimmune Angioedema, POTS (Postural Orthostatic Tachycardia Syndrome), Sjogren's Syndrome, immune deficiency, osteoporosis, and EDS (Ehlers Danlos Syndrome). Thoughts, feelings, academic endeavors, daily adventures (and misadventures). Pitzer College Class of 2018 (Psychology/Sociology) ---- UCLA Extension Patient Advocacy Certificate Program Winter 2019 ------ Family Resource Coach
Sunday, April 30, 2017
Hi Ho, Hi Ho, It's off to Telemetry I Go
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